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Links

PILOT - Patient Education Pamphlets 
Idiopathic Pulmonary Fibrosis
- Amer Jrnl of Resp & Crit Care Med
Idiopathic Pulmonary Fibrosis: Diagnosis and Treatment - Am Jrnl of Resp & Crit Care Med
Idiopathic pulmonary fibrosis: clinical relevance of pathologic classification - Am J Respir Crit Care Med (pdf)  
Quality of life of idiopathic pulmonary fibrosis patients

Conditions leading to Pulmonary Fibrosis are known by many other names

honeycomb lung

At left: end-stage honeycomb lung appearance of IPF
Enlarged Photo


IPF and the Interstitial Pneumonias - Dr Gary Epler

Patients' Handbook on Interstitial Lung Disease
fm Virtual Hospital
Idiopathic Pulmonary Fibrosis - from Virtual Hospital

Coalition for Pulmonary Fibrosis 
Pulmonary Fibrosis Foundation

UCSF Researchers Pinpoint Molecule That Triggers Deadly Progress Of Pulmonary Fibrosis
Idiopathic Pulmonary Fibrosis Past, Present, and Future - NHLBI Workshop Summary

Familial Pulmonary Fibrosis 

Drugs used in treatment of IPF:
   
   Actimmune (Interferon Gamma 1B)
   Prednisone 
 
   Colchicine
   Cytoxan (Cyclophosphamide)
   Imuran (Azathioprine)
   Methotrexate 

Personal sites:

Interstitial Lung Disease - If I never met the creator of this website, you wouldn't be reading these words, as I might never have heard about IPF.  This site is also home to the Huff n Puff Forum

Roger Stevens' Home Page - Roger's IPF experience culminates in a double lung transplant.  Updated often. 

New Lungs - Roger Stevens' new site dedicated to (what else?) lung transplants.

Support sites - eGroups for IPF patients, caregivers & friends

Huff n Puff Forum 
Idiopathic Pulmonary Fibrosis 
IPFers 
PFF - Pulmonary Fibrosis Friends

 

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03 August 2007